This is the story of Raquel, Harold, Archie, Nora, Jana, Ben, Korra, Violet, Rome, Pedro, A.J., Iam, Lisa and other 40 cases around the world, who were diagnosed with a rare genetic disease (ECHS1-D).

Rare diseases do not have funds to be investigated. Parents should be the one who makes all the effort and raise the funds so that they can have a cure.

These are progressive diseases, in which time is crucial. The earlier we raise the funds, the faster the research can move, and thus have the opportunity to find a cure.

With the funds raised, we will be sending the money to both UT Southwestern (Dallas, Texas) and the Hadassah Hospital in Jerusalem, who offer different research to develop treatments that can improve the lives of Raquel and all these children. Both have confirmed to us that this is a candidate gene to do the research. We only need the funds to begin the process.

We have faith and hope that we will witness all kinds of miracles.

All the children in the world deserve a cure.

Thank you very much for your support!

For more information about ECHS1-D, our children, our mission, gene therapy, etc. visit:

https://cure-echs1.com